Category Archives: PWME

Action for Happiness ~Don’t Make Me Laugh

So Cameron is promoting the new charity Action for Happiness. Go Dave, there you are publicly being all nicey nicey to poor sad lonely misfortunates.

Little do they know Dave, those happy little bunnies that look upon us with pity,the misery that YOU & the viscious policies of your Government inflict. In direct contrast to this fluffy public shit, YOU through ATOS ESA WCA cause the most profound misery.

Oh get fresh air AFH says ~NO Dave, being seen outside on a ‘good day’ risks my being accused of being a thief, a cheat & a fake.

Get some exercise AFH says ~Dave, on a rare ‘good day’ I’d love to but the ignorance & vindictivness of the right wing press means that to do so, eveb if I was house/bedbound for days before & after to enable me to get out, would risk me being accused of being a thief, a cheat & a fake.

Take care of yourself AFH says ~Dave listen up, your bullying policies implemented in an incompetent & distinctly viscious manner by ATOS, means that for me to even wear clean matching clothes risks me being accused of being a thief, a cheat & a fake.


Leave a comment

Filed under Cameron welfare reform, ESA, MECFS, PWME, WCA

Open letter to David Cameron PM ~ Hardesthit Virtual Resistance

The Right Hon David Cameron [Open Letter]

Re: Bullying and Hate Crime

I was brought up with the understanding that it’s wrong to pick on people. That bullying is vile & unacceptable. Indeed, there have been many public awareness projects in recent years about this issue. Low life scum is what bullies are, after all (apologies to useful algae). Bullying costs lives.

To my knowledge, I’ve been a decent, well educated, law-abiding citizen. I keep myself to myself. Yet for the last few years I have been subjected to a sustained, & somewhat apparently co-ordinated smear campaign of abuse & bullying. Barely a week goes by without incident of one sort or another. I’m called vile names. The threats to me, the lies told about me & those who are like me; the discrimination towards me, being disbelieved & the systematic attempts to destroy what’s left of my life are unbearable.

There appears to be no respite & no course to redress. I really do not know where to turn. These relentless attacks, which I’ve been pre-warned are likely to get much more personal & severe very soon, are having a huge impact on my ability to cope with everyday life. Not exactly what one needs for good health & well-being.

I used to be a proud Tory, which is fine if you are doing ok. But when through no fault of your own you are living in slum housing, practically in the gutter, no matter what your natural political pre-disposition; voting Tory is never going to be an option I could stomach again.

I thought perhaps you would like to know as I’m aware how highly you rate the Happiness & Well-being of your citizens, I can’t wait for the next questionnaire.

Yours sincerely


P.S. It’s probably irrelevant, but I happen to have M.E. I could give you the names of the bullies but I’m frightened of the personal repercussions. The nationwide vilification of people with M.E. on a practical day to day existence level means terrorists under control orders had more freedom & access to basic things like fresh air, sunlight & free association, let alone a bit of exercise on a rare & precious ‘good day'(for me personally it is important to do if I feel able).

If it looks like disability hate crime & feels like disability hate crime & sounds like disability hate crime …..

Leave a comment

Filed under Cameron welfare reform, ESA, MECFS, PWME, WCA

Protest Against ATOS Virtual Resistance


Protest Against ATOS wk begins

Dear Chris Grayling……I am writing to express my support for the week of protests against Atos Origin.

Atos Origin has recently begun a £300 million contract, awarded by the Conservative-led Government, to carry out ‘work capability assessments’ on all of those claiming Incapacity Benefit.

It is claimed assessments are to test what people can do rather than what they can’t.

However, I believe the real purpose is to strip benefits from as many people as possible.

These tough tests for sickness benefit are ‘all about saving lives not saving money’ claims Employment Minister, Chris Grayling.

I fail to see how that can be the case especially as this system of testing has already led to people with terminal illnesses and severe medical conditions being declared fit for work and having benefits cut.

Disability charities have heard reports of people so distressed that they will have benefits cut that they feel life is not worth continuing and have stated that they have had people say they will end their lives because of this set of health and benefit cuts.

GPs are being ignored in favour of decisions made by Atos Origin.

Many many conditions, change on a daily basis and the future of people unfortunate enough to be suffering from these kind of conditions should not be decided by profit-making companies such as ATOS but by medical specialists.

We are constantly told by the gutter press about the ‘sicknote fakers’ who are cheating the system. But we rarely hear about the tens of thousand of genuinely sick people who are turned down for the Employment Support Allowance but go on to appeal and win. Two thirds of applicants are found ‘fit to work’, yet 40% successfully appeal.

Plans announced for the scrapping of Disability Living Allowance have also revealed that this intrusive testing is likely to be extended to everyone on some form of disability or health related benefit.

Disabled people, their friends and families have a lot to fear. There is real fear and concern about the outcomes of these assessments being carried out by this kind of company rather than specialist medical professionals. Atos Origin do not just do health related testing. They are a global IT and Consultancy company with offices around the UK. One speciality they boast of on their website is having: ‘a team of Organisation and HR professionals who undertake the analysis, design and execution of headcount reduction.’

Assessment of the sick and vulnerable should be removed from ATOS and handed to medical professionals with specialist knowledge who can help the most vulnerable of our society instead of hindering them and placing them on the scrap heap.

Leave a comment

Filed under Cameron welfare reform, ESA, MECFS, PWME, WCA

ME CFS Stress and Isolation

a friend dismissed my requests that they read a few articles on the ME association website (Guardian Burnley report & Changes to ESA WCA Descriptors among them)[I’ll do links when I next get on net other than by phone]. They meant well but seem totally oblivious to the fact they have repeated the pattern of not being listened to & not being believed.

In reality I feel as if I have NO ONE to talk to, NO ONE to keep up to speed on my behalf. Feel totally isolated & alone.

The pains in my chest & up my neck have returned (had if for the entire EIGHT MONTHS that my last WCA Assessment took.) Upped the aspirin to be safe.

And the anxiety dreams have also returned. At worst they are about ATOS Med Assessment & are upsetting in the extreme.

At best they just involve being made homeless. It’s always about being disbelieveved & being pushed to total breakdown.

I often read of people with MS hailing that they” happen to have MS but don’t let it define them.”

I envy that they are allowed to get on with their lives & process their lost lives. The stark difference is that they have black & white test results they can wave in the faces of the disbelievers.

People with ME PWME MECFS in UK reliant on the benefits system do NOT have the luxury of ‘proof’. The constant vilification of us, the whispering campaigns seem purpose made to further isolate us & punish us for the failure of the medical profession to invest in biological research.

I’ve had enough.

The fact that under the previous assessment criteria someone along the line ‘believed’ us enough to award us IB is NO GUARANTEE whatever that we will qualify again. That’s what we want you to know. That’s why we ask you to read the FACTS about what is happening every day to people who like us, previously qualified under the old system.

We are exhausted from existing in limbo. We just want & need to know that you know. We need know that you are protecting us & that includes being heard.

Trust me, if you are a friend of someone with MECFS ~ each time you fail to listen, each time you forget to do something you said you would, each time you are ‘dismissive’ even accidentally, you are causing deep offence & hurt to someone you may profess to want to love & protect.


Filed under Cameron welfare reform, ESA, MECFS, PWME, WCA